I will be at the Fearless Caregiver Conference in Boca Raton on Thursday to receive the 2011 Caregiver Friendly Award my book just won!

THE CAREGIVER’S PATH TO COMPASSIONATE DECISION MAKE: Making Choices For Those Who Can’t IS THE WINNER OF THE 2011 CAREGIVER FRIENDLY® AWARD FROM TODAY’S CAREGIVER MAGAZINE.

Today’s Caregiver, the first national magazine for all family and professional caregivers, and caregiver.com announce the 2011 Caregiver Friendly® Award recipients. The Caregiver FRIENDLY® Awards are designed to celebrate products, services, books and media created with the needs of caregivers in mind.

About The Caregiver Friendly Awards:
Caregiver Friendly® Awards are presented by Today’s Caregiver magazine to celebrate outstanding books, media, products and services designed with the best interest of the family caregiver in mind. Today’s Caregiver, launched in 1995, is published by Caregiver Media Group, which also produces the Fearless Caregiver Conferences, www.caregiver.com and The Fearless Caregiver book, which teaches caregivers how to become their loved one’s fearless advocates within the healthcare system.
http://www.caregiver.com/caregiverfriendly/2011/2011_winners.htm

“The average caregiver is responsible for over $40,000 in health related expenditures each year, in either personal or directed funds,” says Gary Barg, Today’s Caregiver editor-in-chief. “This award is designed to help family caregivers recognize and reward those organizations who will care for them in as committed a manner as they care for their loved ones.”

Fearless Caregiver Conference in Boca Raton, FL
Thursday July 14, 2011
8:00am - 2:30pm
Family Track and Professional Track with CEUs
Embassy Suites Hotel
661 NW 53rd Street
Boca Raton, FL 33487
http://www.caregiver.com/fearlessconference/index.htm
Have a kind and respectful day.

Join me in Portland on June 30th - Sponsored by AARP, Multnomah County Family Caregiver Support and Providence Home Services

AARP, Multnomah County Family Caregiver Support and Providence Home Services invite you to attend the program:

“Empowering Caregivers Who Have to Make Difficult Choices”
Thursday, June 30th
7:00 pm
Providence Cancer Center Auditorium
4805 NE Glisan—Portland
Doors open at 6:30 - Lecture begins at 7PM
The event is free, but space is limited. Please rsvp to:
http://aarpor-empowering-caregivers.eventbrite.com/
or call 503-988-3646

Join me on a teleconference call with The Purposeful Planning Institute on June 10th.

I am honored to be the guest speaker on a teleconference call with The Purposeful Planning Institute. They are an amazing group of people dedicated to making a difference in the lives of others.

Empowering Family Caregivers who are Making the Difficult Decisions
Date: Friday, June 10th
Time: 11:00am ET
http://www.johnawarnick.com/kind10june2011/
See registration information below.

The Purposeful Planning Institute offers a variety of services and learning opportunities designed for professionals who serve families of wealth through the Purposeful Planning Collaboration, The Learning Academy and Purposeful Planning Conferences and Workshops.

The Institute also offers an invaluable and unique service for planned giving professionals, community & family foundation leaders, philanthropic consultants, and other advisors who are genuinely dedicated to philanthropy through the Purposeful Philanthropy Forum.

Registration & Participation
If you are not a member of the Purposeful Planning Collaboration and would like to request a guest PIN, or if you would like to have your PIN resent to you, please contact us or visit http://maestroconference.com/dashboard and enter your email address in the ‘Forgot PIN’ section on the right side of the page.

Important Note: The Maestro Conference system does not always recognize PINs from participants calling in on internet based phones, VOIP or Magic Jacks. However, it does integrate well with Skype. We apologize for any inconvenience and encourage you to let us know if this affects your ability to participate in any of our teleconferences.

Participant Dashboard
If you are at a computer during the call you may access the participant dashboard by clicking on this link: http://maestroconference.com/dashboard. Logging on to the participant dashboard allows you to send messages to the conference host, view PDFs, Power Point presentations and other materials that may be posted there.

If you would like to invite a guest to call in, please feel free to do so, but please ask them to contact us to obtain the call-in number and a personal PIN.

Have a kind and respectful day.

Why I Love Geriatric Care Managers!!

Why I love Geriatric Care Managers

Recently, a friend of ours told us that she couldn’t keep her cat, “Ms. Go,” anymore. Ms. Go loves to be held and to give love. So, I thought about who should get this wonderful cat and I realized that this sweet kitty would be great for a senior. Right then, I knew who to ask for help — My friend, geriatric care manager, Sylvia Thompson from LivHome.com.

I asked her if she could help me find a great person who would appreciate this cat. Sylvia found a dementia care community that was thrilled to have a community cat and she delivered the cat personally. Ms. Go is fitting in beautifully and is bring joy and comfort to both the staff and residents. Nobody paid her to help this kitty, she just did it because this is the kind of person she is.

This is why I love geriatric care managers. They are wonderful problem solvers and have the biggest hearts. Sylvia took the time and knew who to contact. She went the extra mile to make sure that the solution was a good fit for everyone involved. If you would like to hire a geriatric care manager in your town to help you find the right solutions for your loved one, go to the National Association of Professional Geriatric Care Managers at www.caremanagers.org

If you are in the Southern California area, you can call Sylvia at 323-933-5880 or go to http://www.livhome.com/losangeles_seniorcare/c310/About_LivHOME/Regional_Locations/Los_Angeles_Senior_Care_.html..

Have a kind and respectful day.

5 Stars!!! - National Book Critic Review Just In

THE CAREGIVER’S PATH to COMPASSIONATE DECISION MAKING: Making Choices for Those Who Can’t
Publisher: Greanleaf Book Group LLC Paperback July 1, 2010 Price: $14.95 USA

“From the front cover which shows two hands in the shape of a heart holding a rock which is also in the shape of a heart, THE CAREGIVER’S PATH to COMPASSIONATE DECISION MAKING: Making Choices for Those Who Can’t no doubt is a rock size lump in the throat to all who deny they will eventually need this book.

THE CAREGIVER’S PATH to COMPASSIONATE DECISION MAKING is a great book and a KIND tearjerker too! Where no tomorrow is guaranteed, our loved ones might get to where they are without full faculties and can?t answer the questions or direct others to who they want to answer questions in their best interests or have documentation which represents such and their convictions. Author Viki Kind?s mastery is in getting the reader through the battling of keeping one?s composure to making the tough choices when a loved one whose outlook is tainted from dying needs support. The fourteen chapters could stand alone, each as a teaching tool, for care givers.

The first part of the book concerns medical decisions and the second part concerns death. “Did I matter?” is a heartfelt question no one wants to be unable to answer at the destination life holds. Anyone with a heart will see through watery eyes reading Author Viki Kind’s The Journey Through The Early Days of Dying and The Final Days of Dying. Kind?s step-by-step process for caregivers to use is simple: 1) a decision making framework of 2) Shared Decision Making Model 3) Sliding Scale for Decision Making 4) The Assent Tool Author Viki Kind provides an authentic knowing voice on the necessities of a compassionate outlook on the growing problem. It is a problem now affecting the whole mass of baby boomers seeking and searching for these very same tough questions and one day will too be faced with the bittersweet answers because they get one to fess up to mortality?s limits, timeliness of determining a loved one’s competency and capacity, and the need to at least have an understanding enough to lead one to valid choices.

Baby Boomers of late are that aging escapes no one. In regencies of “60 is the new 50,? that only goes so far in winning but a mind game not the war of health and longevity. Sooner or later there is no candy-coating that 100 is not the new 90 because that is a mute point; most don?t make it to that age. Likewise, in the best interest of loved ones is this “tell it like it is,? pull no punches, optimal reference guide as a companion to those readers during the tough times they will eventually face; when a test of courage and on what basis the most difficult medical decisions are made. Unequivocally, then the answer to “Did I matter?? is answered by actions of the caregiver and is brought into the present tense. Meaning that, that is when author Viki Kind’s book, and its bittersweet bread and butter and not a lot of fluff, go a long way into making that very last release of a loved one’s grip from your hand be one in which you knew you did the best you could (do) until the end. THE CAREGIVER’S PATH to COMPASSIONATE DECISION MAKING: Making Choices for Those Who Can’t is a rare find with great merit worth (and worthy of) holding onto the rest of one’s life.”

Salvador SeBasco Literary Director and host of THE INSIDE VIEW SHOW (TM) BROADCAST book critic, on staff with a CNN affiliate station.
April 10, 2011

April 13 - An Evening with Viki Kind - Austin, Texas, 6:30 PM Presentation sponsored by the Alzheimer’s Association of Texas and Austin Groups for the Elderly

April 13 - An Evening with Viki Kind - Austin, Texas, 6:30 PM
Presentation sponsored by the Alzheimer’s Association of Texas and Austin Groups for the Elderly.

The Alzheimer’s Association-Capital of Texas Chapter is a non-profit organization that provides family support, community education, public awareness and supports research for the prevention, cure and treatment of Alzheimer’s disease and related disorders.

Their mission is to provide leadership to enhance care and support services for individuals and their families while supporting the advancement of research to eliminate Alzheimer’s disease. Their vision is a world without Alzheimer’s disease.
Austin Groups for the Elderly is a non-profit organization empowering caregivers, the elderly and their families through education, advocacy, resources and support.

RSVP to 512.241.0420 or email
TXPrograms@txalz.org

Have a kind and respectful day.

March is Brain Injury Awareness Month - A Concussion is a Brain Injury

Brain Injury Awareness Month March 2011
A concussion is a brain injury. Get the facts. http://www.biausa.org/brain-injury-awareness-month.htm

In recognition of March as Brain Injury Awareness Month and the Brain Injury Association’s ongoing commitment to sports and concussions, the Brain Injury Association of America (BIAA) and its nationwide network of more than 40 chartered state affiliates is continuing its nationwide education and advocacy campaign: “A concussion is a brain injury. Get the facts.” This year’s campaign launches in March with radio and print public service announcements, awareness proclamations and special events. A state advocacy effort to introduce legislation to train coaches and protect youth athletes will continue throughout the year along with ongoing nationwide education.

A concussion is a brain injury, period. BIAA believes coaches of every school athletic team and every extracurricular athletic activity should be trained to recognize the signs and symptoms of brain injury, including concussions and second impact syndrome. BIAA also believes young athletes who appear to have sustained a concussion should have written authorization by a health care professional before returning to play.

A concussion is caused by a bump, blow or jolt to the head, or from a blow to the body that causes the head to move rapidly back and forth. Most concussions occur without a loss of consciousness and according to the Centers for Disease Control and Prevention (CDC), a lack of proper diagnosis and management of concussion may result in a serious long-term consequences, or risk of coma or death. Signs and symptoms may be noticeable immediately, or it may take days or weeks before they are present.

United State each year. Of that number, U.S. emergency departments treat approximately 135,000 sports- and recreation-related traumatic brain injuries (TBIs), including concussions, among children ages 5 to 18.

To learn more about these initiatives or to learn more about awareness and advocacy events taking place in your state during the month of March and throughout the year and how you can get involved, contact your chartered state affiliate today. For more information on media materials contact the Director of Affiliate Services by e-mail or phone at 703-761-0750, ext. 622.

Have a kind and respectful day.

The Ethical Use of Medical Restraints - The Goal is Restraint Free Care

In 1990, about 30-40% of nursing home residents in the US were restrained. In 2001, less than 9% of nursing home residents were currently restrained. We are slowly getting better at keeping our patients out of restraints in both nursing homes and in hospitals. But we still have room for improvement. In Europe, the rate is less than 5%. The difference between the countries is not what kind of patient is in restraints but what the standard of care of is in that particular country. The good news is that with the reduction of medical restraint use, there has been a significant decrease in patient injuries and deaths.

Ultimately our goal needs to be restraint-free care. As a loved one of the patient, you should be an active participant in helping the staff keep your loved one free of restraints. How do you do this? Here are a few suggestions. The first thing to realize is that there is no one-size fits all solution. No two patients are exactly alike regardless of the diagnosis or the problem. You will want to personalize the solution for your loved one, not the generic patient.

The next thing you want to do is to ask, “Why are they acting like this? What is going on?” Too often we rush to thinking the person has dementia or some other mental deficit, when really the issue might be a reaction to a new medication, untreated pain or some other disease showing up. The sooner you can identify why the bad behavior is showing up, the sooner you will be able to brainstorm to find an appropriate solution. The solution should match the personality of the patient. Are they a patient who has always loved music, done crafts, liked having pictures of their family around, liked to listen to the radio etc. Then choose distractions and solutions that will fit their lifestyle.

You may have to try multiple interventions before you will find one that works. Don’t give up if the first thing you try doesn’t work. Please make the effort to find other solutions rather than tying up your love ones. You wouldn’t want to be tied up against your will and neither do they.

For a great handbook on reducing the use of restraints go to http://www.theconsumervoice.org/node/477.

Have a kind and respectful day.

A plea to Elder Law attorneys and others who are writing people’s Advance Directives

For the record, I am a fan of lawyers and am incredibly grateful for all the ways they take care of us and protect us.

When someone wants to document their wishes in an advance directive, living will or durable power of attorney, the person who will be signing the form must have the ability to think for themselves. This is called decisional capacity or competency. Although a person doesn’t need to use a lawyer for these forms many people do. When someone brings in a form, which was completed by a lawyer, healthcare professionals assume that the lawyer made sure that the person had the capacity to think before allowing them to sign the form.

I don’t know if other people are aware of this issue but it has been recently brought to my attention that there is an industry practice within elder law community where lawyers are writing advance directives for people without capacity. They work with the family to determine what the person would have said, then proceed to have the person, who has limited or no capacity, sign the advance directive. (Not every attorney does this, but many do. There are many fine lawyers out there who are protecting the public.)

Their justification is that it is actually protecting the family from having to go to court to establish conservatorship later on. Their intentions are good, but their practice is illegal. When I brought this to some elder law lawyer’s attention, they had no defense. And when I explained that it now brought doubt to the validity of all legally prepared advance directives, I only got blank stares.

I have asked around and this is not an isolated incident. It makes me now question if I can even believe a lawyer prepared document that the family brings in. As an ethicist and healthcare professional, I am asking those of you who work in the industry to make sure you are only having those who understand what they are signing, sign their documents. The skilled nursing home community has a legal protection in place by mandating that an outside ombudsman witness the signing of legal documents to make sure those with disabilities aren’t being taken advantage of. I would hate to see the legal community need to have a similar watchdog in place. I need all of you to do the right thing so I can then use these documents to advocate appropriately when these individuals are in my hospitals.

Have a kind and respectful day.

Mental Illness Awareness Week 2010: October 3-9, 2010 - NAMI is there for you

Mental Illness Awareness Week 2010: October 3-9, 2010

You don’t have to be alone on this journey. Learn more about the full spectrum of programs and services that NAMI provides across the country for people whose lives have been affected by serious mental illness. Go to http://www.nami.org/Template.cfm?section=Find_Support
to find the support you need:

• Center for Excellence
The NAMI Center for Excellence team works to provide NAMI State Organizations and NAMI Affiliates with the the technical assistance, resources and tools they need to build organizational capacity and achieve the goals of the NAMI Standards of Excellence.
• State and Local NAMIs
NAMI’s 1,200 affiliate organizations provide local services, support and other opportunities for consumers and their families.

• Education, Training and Peer Support Center
NAMI offers an array of education and training programs and services for consumers, family members, providers and the general public. These include Family-to-Family, Peer-to-Peer, NAMI Support Group, In Our Own Voice and more.

• Consumer Support
NAMI empowers and educates mental health consumers to address their issues around care, treatment, services, mutual support and consumer rights.

• Child and Adolescent Action Center
Families know all too well that the system is failing children and adolescents with mental illnesses. NAMI created the Child & Adolescent Action Center in response to this crisis, to focus attention on systems reform and to help and support families.

• NAMI on Campus
NAMI on Campus is a network of student-led mental health awareness, education, and advocacy groups tailored to the needs of individual college communities.

• Multicultural Action Center
The Multicultural Action Center focuses attention on system reform to eliminate disparities in mental health care for diverse communities and cultural competence in treatment and support for all who are affected by serious mental illness.

• NAMI Legal Center
The NAMI Legal Center provides lawyer referrals as a service to our members and the general public.

• Veterans Resource Center
NAMI is proud to provide the following resources for veterans and active duty military members, as well as their families, friends, and advocates.

• Missing Persons Support
Resources and support for locating missing persons with mental illness.

• For Providers
To help mental health professionals assist consumers and families further, NAMI has created this section of the NAMI Web site especially for you.

• Information Helpline
Trained volunteers provide information, referrals, and support to all who have questions about or are affected by serious mental illness. Call 1-800-950-NAMI.

Have a kind and respectful day.

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