National Healthcare Decisions Day Set for April 16, 2010

National Healthcare Decisions Day Set for April 16, 2010

KindEthics.com, along with other national, state and community organizations, are leading a massive effort to highlight the importance of advance healthcare decision-making—an effort that has culminated in the formal designation of April 16, 2010 as National Healthcare Decisions Day (NHDD). As a participating organization, KindEthics.com is providing information and tools for the public to talk about their wishes with family, friends and healthcare providers, and execute written advance directives (healthcare power of attorney and living will) in accordance with your state laws. These resources are available on the KindEthics.com Resource Page.

For a free handout about advance care planning and advance directive forms, email Viki at viki@kindethics.com

“As a result of National Healthcare Decisions Day, many more people in our community can be expected to have thoughtful conversations about their healthcare decisions and complete reliable advance directives to make their wishes known,” said [List spokesperson name, title and organization]. “Fewer families and healthcare providers will have to struggle with making difficult healthcare decisions in the absence of guidance from the patient, and healthcare providers and facilities will be better equipped to address advance healthcare planning issues before a crisis and be better able to honor patient wishes when the time comes to do so.”

For more information about National Healthcare Decision Day, please visit www.nationalhealthcaredecisionsday.org.

Have a kind and respectful day.

Interview with Julie Hall, author of “Boomer Burden: Dealing with your parent’s lifetime accumulation of stuff,” on February 19th, 9AM pacific. www.BlogTalkRadio.com/kindethics

Join me as I interview Julie Hall, the Estate Lady. She is the author of “Boomer Burden: Dealing with your parent’s lifetime accumulation of stuff,” on February 19^th, 9AM pacific. www.BlogTalkRadio.com/kindethics

The Estate Lady^®, professional estate liquidator Julie Hall, knows what to do. Whether your parents are still alive or you’re in the middle of a crisis, The Boomer Burden has solutions. Hall provides trustworthy counsel on how to:

• divide your parents’ estate with peace of mind
• minimize fighting with siblings during the estate settlement process
• clear out the family home in ten days or less
• identify potential items of value in the home
• have “that conversation” with your parents
• prepare your own children for the future

The Estate Lady^® offers guidance for any executor, heir, or beneficiary, sharing some of her most fascinating stories as well as helpful checklists of the things that need to be done now and at the time of your loss.

IF YOU HAVE PARENTS, THIS BOOK IS FOR YOU.

The Boomer Burden gives you practical, effective steps for liquidating and distributing your parents’ assets in a way that both honors them and promotes family harmony for generations to come.

Julie Hall, known as The Estate Lady^®, is a professional estate contents expert and certified personal property appraiser who specializes in estate liquidation. With more than seventeen years of experience with families from the southeastern United States, Julie has successfully assisted thousands of individuals in the daunting and often painful process of managing their deceased parents’ affairs. In addition to her hands-on experience, she is a speaker to civic groups, retirement communities, churches, and professional organizations. She has also written a monthly column, “Ask the Estate Lady^®.” Julie resides in Charlotte with her husband and daughter.

Have a kind and respectful day.

Caregiver Heroes

The other day, my 7-year-old nephew said to my husband, “I wish I had a super power, even if it was a pathetic one like folding towels.” Of course we had a good laugh about it when he shared it with me later that day. This kid has always had a magic way of expressing himself.

Later that day, my husband said to me, “Everyday things can be super powers. Like being able to have a caring heart or feeling empathy for someone’s suffering.” I realized that this is the daily journey of caregivers. So many caregivers wish they had super powers to get through their days. When in reality, you don’t have to be a superhero; you are already an everyday hero.

Have a kind and respectful day.

Interview with Natalie Buriel, MSW and Linda Alexander-Lieblang, Director opf Regions, Alzheimer’s Association, California Southland Chapter, “Memory Club and other services available at the Alzheimer’s Association”

Listen live or download later to my interview with Natalie Buriel, MSW and Linda Alexander-Lieblang, RMT, MA, Director of Regions, Alzheimer’s Association, California Southland Chapter to discuss the Memory Club and other services available at the Alzheimer’s Association on January 29th, 10AM pacific, on Blogtalkradio.com/kindethics

Whether your you or your loved one has Alzheimer’s or another form of dementia, the Alzheimer’s Association has specialized services available no matter what stage or situation you are dealing with.  I have listed below a number of their services.  Take some time and look through what they have to offer.   Check out their resources at Alz.org.  They also have support material in Chinese, Spanish and Korean.

The Alzheimer’s Association is there to help.  Please reach out to them and get the support and help you need.

Have a kind and respectful day.

Helpline

The Alzheimer’s Association Helpline operates 24 hours a day, seven days a week, in 140 languages. Our staff is highly trained and knowledgeable about all aspects of Alzheimer’s disease. Call us if you have questions about:

· Alzheimer’s disease or memory loss, medications and treatment options, brain health and care options

· How the Association can help you

· Caregiving tips and respite care options

· Services available in your community and referrals

You can also call us for emotional support –– as often as you need. We know that living with Alzheimer’s can be overwhelming at times. Remember, we are here for you –– all day, every day.

Care consultation

Our professional staff is dedicated to helping people navigate through the difficult decisions and uncertainties people with Alzheimer’s and their families face at every stage of the disease. We can provide care consultation services to you by telephone, e-mail or in person. These include:

· Assessment of needs

· Assistance with planning and problem solving

· Supportive listening

Contact us for more information:

Phone: 1.800.272.3900

Support groups

Support groups provide a safe place where people go to learn, listen, share and gain emotional support from others who are also on a unique journey of providing care to a person with dementia.  Support groups are held at various times and in many different communities and languages. Each group is different, and depending on each person’s needs will offer different things. Check to see if there is a group close to you that fits your needs.

Support group listing

Message boards

The Alzheimer’s Association message boards and chat rooms provide an online community for persons with Alzheimer’s, caregivers and care providers. Our message boards have thousands of registered members from around the United States and thousands more who refer to the stories and information that is available 24 hours a day.

Join the Alzheimer’s Association online community.

Publications

· The Alzheimer’s Association offers dozens of fact sheets and brochures.
Click here for a listing.

We also maintain a variety of educational materials (brochures, videos, audiotapes and books) on topics related to Alzheimer’s disease and related disorders. To learn more about our library, call us at 1.800.272.3900.

Quarterly magazine

Our chapter also prints a free quarterly magazine. Click here to view the current issue. If you would like a hard-copy, please call the Helpline at (800) 272-3900.

Educational programs

We offer many educational programs each year that address the specific interests of the general public, individuals with the disease and their families.

Education program listing.

Professional training

We offer classroom and Web-based training for healthcare supervisors and direct care workers in assisted living and nursing homes. Many programs allow you to earn CEUs.

Professional training listings.

Multilingual information

Alzheimer’s disease and other disorders that cause dementia know no boundaries. Many individuals and families in ethnic and cultural minority groups are in need of solid information about Alzheimer’s disease and health resources.

· Chinese educational materials

· Korean educational materials

· Spanish educational materials

Lasman Family Library

The Alzheimer’s Association maintains a multimedia library of books, periodicals, videotapes, CDs, DVDs and other materials pertinent to Alzheimer’s disease and related disorders. The collection covers activities, adult day services, caregiving issues, diagnosis, first-person accounts, legal and financial issues, long-term care options, medical research, memory, stages of Alzheimer’s, and more. There is a selection of children’s books, as well as resources in Spanish and other foreign languages. The library is available to family members, caregivers, professionals and students.

The Lasman Family Library is open from 10:00 a.m. to 4:00 p.m., Monday through Friday. Appointments are required; please call (323) 938-3379 and ask for Judy.

• First time borrowers must register.
• A sign-out card must be completed for each item.
• The loan period for library materials is 30 days.
• Two videos or disks may be borrowed at one time, with a deposit by check of $100.00 for each, to be returned when the item is brought back.
• Four books may be borrowed at one time

Satellite libraries with basic collections are housed at these Southland offices:
Greater San Fernando Valley (Northridge); please (818) 677-4404
Coachella Valley (Rancho Mirage): (760) 328-6767

WE MAKE NO PROVISION FOR LOANS BY MAIL:  ALL MATERIALS MUST BE PICKED UP IN PERSON.

Medic Alert® + Safe Return®

In a move to significantly improve the safety of individuals with Alzheimer’s, the Alzheimer’s Association and the MedicAlert Foundation have created an alliance to bring you MedicAlert® + Alzheimer’s Association Safe Return®.

MedicAlert + Safe Return offers you the best of both worlds:

· Assistance when a person wanders or is lost

· Access to vital medical information in the time of need

Learn more about Safe Return.

Adult Day Services

What are adult day services?
Adult day services are centers where people with memory problems can spend part of their day in a caring environment. What can they do for you?
• Provide time for you to:
• Go to your job
• Make phone calls and run errands
• Take a nap and rest
• Lower your stress
• Provide emotional support   What can they offer the person with memory loss?
• Time to be outside of the home
• Activities with other people
• A chance to make new friends
• A nutritious meal

Learn more about adult day services:
• Types of adult day services
• Steps to selecting adult day services
• Los Angeles County directory of adult day services
• Riverside and San Bernardino Counties directory of adult day services

Local resources and referrals

We maintain updated information on home care, adult day care, care coordination, assisted living, skilled nursing facilities, eldercare lawyers and transportation available in the community. Our staff and trained professionals can help assess whether a specific care provider meets the needs of an individual with Alzheimer’s.
Download the Resource Directory

For more information, please contact us: (800) 272-3900.

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Clinical trials index

· Clinical studies – what they are, why participate

· Nationwide clinical trials index

· Local clinical trials

· Local clinical trials-descriptions

Shared Suffering – Doctors and Patients Are In This Together

I was speaking to a doctor the other day who is drowning under a sea of patients. He is expected to see 25 patients in the hospital per day as well as admitting those who are coming in through the emergency room. And what makes his day even harder is waking up each morning; knowing his day is already doomed. (This is a well-meaning, good doctor who is still fighting to take care of his patients in a broken system.)

The patients and families he sees are angry that they have had to wait so long. He ends up spending most of his valuable time explaining and apologizing for the delays rather than actually taking care of the patient. If you add up 5minutes of apologizing times 25 patients; that equal about 2 hours of his workday. No wonder he doesn’t have enough time. When he is over-booked, he loses minutes each time he walks into the room.

And unfortunately, even when patients are told that he is busy handling an emergency or life-or-death situation, the patient and/or family is upset about having to wait so long. I totally understand this. We all want to be seen right away and want our needs to be taken seriously. But I think we all need to face the reality of medicine today. Our doctors are overwhelmed and we are asking for more than is possible from them.

I know this is difficult to accept. Our standards and sense of entitlement have become so high that our expectations have outgrown the system. I am not saying that you shouldn’t advocate for your health, but please bring some patience with you in the process. Bring a book to read, a game to play or your phone charger with you so you can call your friends. Most of our doctors are really trying their best. Don’t waste your valuable minutes with the doctor complaining about the wait, but get right to the point and use your time wisely. You only get a few minutes with the doctor so use them well.

Have a kind and respectful day.